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Ivy Heart Foundation Congenital Heart Defect Awareness

The Heart Behind Ivy Heart

Ivy Heart was created from a place that words often struggle to capture — love, fear, resilience, and hope all living side by side.

As a parent navigating a Congenital Heart Defect (CHD) journey, I experienced firsthand how quickly life can change. The uncertainty. The questions. The long days filled with medical language, waiting rooms, and moments that require strength you didn’t know you had.

Children’s Healthcare of Atlanta became more than a hospital. It became a place of support, expertise, and hope during one of the most defining seasons of our lives.

Turning Experience Into Purpose

Storytelling with intention, rooted in CHD journeys

Ivy Heart uses storytelling and purpose-driven projects to turn personal experience into something that can help others.

Bring visibility to Congenital Heart Defects  so that more people understand what CHD is and how it affects children and families.
Create space for understanding and compassion  by sharing stories that invite empathy, not pity.
Support Children’s Healthcare of Atlanta  through intentional giving, as a way to honor the care that has meant so much.
The book was the first step — a way to tell a story rooted in heart, honesty, and hope. Each purchase supports Ivy Heart’s mission and helps give back to CHOA in a meaningful way.
A Personal Commitment

Guided by care, transparency, and respect

Ivy Heart is deeply personal. Every decision is made with care, transparency, and respect for the families who are walking similar paths.

This work is done in honor of:

  • Children living with CHD.
  • Families navigating complex medical journeys.
  • The healthcare professionals who provide extraordinary care.

Ivy Heart is a reminder that even in the hardest moments, purpose can grow — and awareness can make a difference.

Looking Forward

Impact over scale, with heart at the center

Ivy Heart will continue to grow thoughtfully, guided by lived experience and a commitment to impact over scale.

As the organization evolves, the mission remains the same: to raise awareness for Congenital Heart Defects and give back to Children’s Healthcare of Atlanta — with heart at the center of everything.

Thank You for Being Here

If Ivy Heart resonates with you, thank you for taking the time to read this story, support the work, and help carry awareness forward.